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dc.contributor.authorDeWeese, Pamelaen_US
dc.date.accessioned2014-03-14T21:36:33Z
dc.date.available2014-03-14T21:36:33Z
dc.date.issued2002-05-06en_US
dc.identifier.otheretd-05222002-224626en_US
dc.identifier.urihttp://hdl.handle.net/10919/42773
dc.description.abstract(ABSTRACT) The Human Genome Project, a multi-national initiative to map and sequence the entire human genome, is expected to reach completion in the year 2003. One of the more immediate and direct results of this remarkable scientific effort is an increase in both the number and range of genetic tests available. Although there is enormous value in the knowledge gained from information that predicts present or future disease, there are also some risks. This thesis, based on the content analysis of genetic nondiscrimination legislation and evidence obtained from individuals involved in the policy formation process, reveals how the Ethical, Legal, and Social Implications (ELSI) Program of the U.S. Human Genome Project is dealing with the possibility that insurers and employers will misuse genetic information. The findings from both the content analysis and the lived experience survey demonstrate that the ELSI program has made a substantial impact on forming this legislation.en_US
dc.publisherVirginia Techen_US
dc.relation.haspartTitlePage.pdfen_US
dc.relation.haspartedits_post_defense_0508.pdfen_US
dc.rightsI hereby certify that, if appropriate, I have obtained and attached hereto a written permission statement from the owner(s) of each third party copyrighted matter to be included in my thesis, dissertation, or project report, allowing distribution as specified below. I certify that the version I submitted is the same as that approved by my advisory committee. I hereby grant to Virginia Tech or its agents the non-exclusive license to archive and make accessible, under the conditions specified below, my thesis, dissertation, or project report in whole or in part in all forms of media, now or hereafter known. I retain all other ownership rights to the copyright of the thesis, dissertation or project report. I also retain the right to use in future works (such as articles or books) all or part of this thesis, dissertation, or project report.en_US
dc.subjectlegislationen_US
dc.subjectgenetic discriminationen_US
dc.subjectpublic participationen_US
dc.titleThe ELSI Research Program and Genetic Nondiscrimination Legislation: A Study in Science and Public Poilicyen_US
dc.typeThesisen_US
dc.contributor.departmentScience and Technology Studiesen_US
dc.description.degreeMaster of Scienceen_US
thesis.degree.nameMaster of Scienceen_US
thesis.degree.levelmastersen_US
thesis.degree.grantorVirginia Polytechnic Institute and State Universityen_US
thesis.degree.disciplineScience and Technology Studiesen_US
dc.contributor.committeechairZallen, Doris T.en_US
dc.contributor.committeememberLa Berge, Ann F.en_US
dc.contributor.committeememberAllen, Barbara L.en_US
dc.identifier.sourceurlhttp://scholar.lib.vt.edu/theses/available/etd-05222002-224626/en_US
dc.date.sdate2002-05-22en_US
dc.date.rdate2003-07-26
dc.date.adate2002-07-26en_US


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