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dc.contributor.authorDeWeese, Pamelaen
dc.date.accessioned2014-03-14T21:36:33Zen
dc.date.available2014-03-14T21:36:33Zen
dc.date.issued2002-05-06en
dc.identifier.otheretd-05222002-224626en
dc.identifier.urihttp://hdl.handle.net/10919/42773en
dc.description.abstractThe Human Genome Project, a multi-national initiative to map and sequence the entire human genome, is expected to reach completion in the year 2003. One of the more immediate and direct results of this remarkable scientific effort is an increase in both the number and range of genetic tests available. Although there is enormous value in the knowledge gained from information that predicts present or future disease, there are also some risks. This thesis, based on the content analysis of genetic nondiscrimination legislation and evidence obtained from individuals involved in the policy formation process, reveals how the Ethical, Legal, and Social Implications (ELSI) Program of the U.S. Human Genome Project is dealing with the possibility that insurers and employers will misuse genetic information. The findings from both the content analysis and the lived experience survey demonstrate that the ELSI program has made a substantial impact on forming this legislation.en
dc.publisherVirginia Techen
dc.relation.haspartTitlePage.pdfen
dc.relation.haspartedits_post_defense_0508.pdfen
dc.rightsIn Copyrighten
dc.rights.urihttp://rightsstatements.org/vocab/InC/1.0/en
dc.subjectlegislationen
dc.subjectgenetic discriminationen
dc.subjectpublic participationen
dc.titleThe ELSI Research Program and Genetic Nondiscrimination Legislation: A Study in Science and Public Poilicyen
dc.typeThesisen
dc.contributor.departmentScience and Technology Studiesen
dc.description.degreeMaster of Scienceen
thesis.degree.nameMaster of Scienceen
thesis.degree.levelmastersen
thesis.degree.grantorVirginia Polytechnic Institute and State Universityen
thesis.degree.disciplineScience and Technology Studiesen
dc.contributor.committeechairZallen, Doris T.en
dc.contributor.committeememberLa Berge, Ann F.en
dc.contributor.committeememberAllen, Barbara L.en
dc.identifier.sourceurlhttp://scholar.lib.vt.edu/theses/available/etd-05222002-224626/en
dc.date.sdate2002-05-22en
dc.date.rdate2003-07-26en
dc.date.adate2002-07-26en


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