Using Scoping Reviews to Identify Models for Participatory Design of Pandemic Communication Research

We report on an interdisciplinary scoping review project that sought to broadly review relevant methodological approaches to community engagement in pandemic prevention research. We reviewed abstracts for 1,000 published articles and 211 full-text articles that fell under search terms related to community engagement in infectious disease outbreak communication. We identified 71 papers from across a wide range of disciplines that embraced the spirit of participatory research and that can serve as models in ongoing pandemic science collaborations. While equity-driven participatory design of communication has not taken hold in literature about communication in the face of public health emergencies of international concern, there are positive signs of increasing advocacy for, and—to a lesser degree—uptake of non-extractive research practices in this context.