Incapacitated and Alone: Prevalence of Unbefriended Residents in Alberta Long-Term Care Homes

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dc.contributor.authorChamberlain, Stephanie A.en
dc.contributor.authorDuggleby, Wendyen
dc.contributor.authorFast, Janeten
dc.contributor.authorTeaster, Pamela B.en
dc.contributor.authorEstabrooks, Carole A.en
dc.coverage.countryCanadaen
dc.coverage.stateAlbertaen
dc.date.accessioned2020-02-11T20:22:34Zen
dc.date.available2020-02-11T20:22:34Zen
dc.date.issued2019-10en
dc.description.abstractThe objective of this study was to assess the prevalence of residents who are incapacitated and have no surrogate decision maker, known as the "unbefriended" in Alberta long-term care (LTC) homes. Using cross-sectional online survey methods, data were collected from 123 staff (i.e., directors of care/nursing, administrators) from Alberta LTC homes. Information was collected on survey respondents' demographic characteristics, number of unbefriended residents, and on organizational characteristics. The overall prevalence of unbefriended residents in LTC homes was 4.14% in Alberta (SD = 6.28%, range: 0%-34.6%). Homes with the highest prevalence (nearly 15%) of unbefriended residents had >135 beds and were public not-for-profit and located in large urban centers. Fifty-three percent of unbefriended residents were male. The highest prevalence of unbefriended residents lived in homes located in large urban centers and public not-for-profit operators. Population level and LTC home level prevalence data are needed to assess the scope of unmet needs.en
dc.description.notesThe author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This work was supported by an Alzheimer Society of Canada Doctoral Fellowship to S.A.C. and a Tier 1 Canada Research Chair in Knowledge Translation to C.A.E.en
dc.description.sponsorshipAlzheimer Society of Canada Doctoral Fellowship; Tier 1 Canada Research Chair in Knowledge Translationen
dc.format.mimetypeapplication/pdfen
dc.identifier.doihttps://doi.org/10.1177/2158244019885127en
dc.identifier.issn2158-2440en
dc.identifier.issue4en
dc.identifier.other2158244019885127en
dc.identifier.urihttp://hdl.handle.net/10919/96799en
dc.identifier.volume9en
dc.language.isoenen
dc.rightsCreative Commons Attribution 4.0 Internationalen
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/en
dc.subjectunbefriendeden
dc.subjectsurrogate decision makeren
dc.subjectlong-term careen
dc.subjectprevalenceen
dc.subjectsurveyen
dc.titleIncapacitated and Alone: Prevalence of Unbefriended Residents in Alberta Long-Term Care Homesen
dc.title.serialSage Openen
dc.typeArticle - Refereeden
dc.type.dcmitypeTexten
dc.type.dcmitypeStillImageen

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