Developing a Local Networking Group for Adults with Celiac Disease in Southern Virginia

Abstract

Celiac disease is an autoimmune disease affecting the microvilli of the small intestine. Celiac disease requires a strict diet free of wheat, rye, and barley. Even a minimum exposure of a few crumbs can cause microvilli damage and can cause symptoms for up to two weeks. Individuals with celiac disease often report decreased quality of life due to the social and emotional challenges of maintaining a strict gluten-free diet. Support groups have been shown to be an effective way for individuals to navigate social and emotional challenges for disease management. The purpose of this project was to develop a support group for individuals with celiac disease in southern Virginia to address emotional support, access to evidence-based research, and build empowerment to adhere to a strict gluten-free diet. Support groups The pilot program was delivered as a virtual support group. It focused on providing emotional support and empowerment by discussing hidden sources of gluten, balancing a healthy diet, and social navigation. Additionally, it served as a safe space for participants to feel heard, share their challenges, and learn from others. Evaluation surveys indicated that participants felt heard and their learning needs were met by the support group. Implications arose as only one individual participated. The results are limited but support the existing literature that virtual support groups can provide emotional support for adults with celiac disease.