Access to Autism Spectrum Disorder Services for Rural Appalachian Citizens

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dc.contributor.authorScarpa, Angelaen
dc.contributor.authorJensen, Laura S.en
dc.contributor.authorGracanin, Denisen
dc.contributor.authorRamey, Sharon L.en
dc.contributor.authorDahiya, Angela V.en
dc.contributor.authorIngram, L. Mariaen
dc.contributor.authorAlbright, Jordanen
dc.contributor.authorGatto, Alyssa J.en
dc.contributor.authorScott, Jen Pollarden
dc.contributor.authorRuble, Lisaen
dc.contributor.departmentCenter for Autism Researchen
dc.contributor.departmentComputer Scienceen
dc.contributor.departmentPsychologyen
dc.contributor.departmentFralin Biomedical Research Instituteen
dc.date.accessioned2020-02-17T13:55:20Zen
dc.date.available2020-02-17T13:55:20Zen
dc.date.issued2020-01en
dc.description.abstractBackground: Low-resource rural communities face significant challenges regarding availability and adequacy of evidence-based services. Purposes: With respect to accessing evidence-based services for Autism Spectrum Disorder (ASD), this brief report summarizes needs of rural citizens in the South-Central Appalachian region, an area notable for persistent health disparities. Methods: A mixed-methods approach was used to collect quantitative and qualitative data during focus groups with 33 service providers and 15 caregivers of children with ASD in rural southwest Virginia. Results: Results supported the barriers of availability and affordability of ASD services in this region, especially relating to the need for more ASD-trained providers, better coordination and navigation of services, and addition of programs to assist with family financial and emotional stressors. Results also suggested cultural attitudes related to autonomy and trust towards outside professionals that may prevent families from engaging in treatment. Implications: Relevant policy recommendations are discussed related to provider incentives, insurance coverage, and telehealth. Integration of autism services into already existing systems and multicultural sensitivity of providers are also implicated.en
dc.format.mimetypeapplication/pdfen
dc.identifier.doihttps://doi.org/10.13023/jah.0201.04en
dc.identifier.issue1en
dc.identifier.urihttp://hdl.handle.net/10919/96839en
dc.identifier.volume2en
dc.language.isoenen
dc.rightsCreative Commons Attribution 4.0 Internationalen
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/en
dc.titleAccess to Autism Spectrum Disorder Services for Rural Appalachian Citizensen
dc.title.serialJournal of Appalachian Healthen
dc.typeArticle - Refereeden
dc.type.dcmitypeTexten

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Scholarly Works, Center for Autism Research
Scholarly Works, Computer Science
Scholarly Works, Fralin Biomedical Research Institute at VTC
Scholarly Works, Psychology
Strategic Growth Area: Equity and Social Disparity in the Human Condition (ESDHC)