A Family-Based Cognitive-Behavioral Intervention for Pediatric Patients with Sickle Cell Disease

dc.contributor.authorMoore, Rachelen
dc.contributor.committeecochairFinney, Jack W.en
dc.contributor.committeecochairJones, Russell T.en
dc.contributor.committeememberDeater-Deckard, Kirbyen
dc.contributor.committeememberOllendick, Thomas H.en
dc.contributor.committeememberAllen, Alexandra Boevingen
dc.contributor.departmentPsychologyen
dc.date.accessioned2017-04-06T15:45:04Zen
dc.date.adate2011-04-29en
dc.date.available2017-04-06T15:45:04Zen
dc.date.issued2011-03-21en
dc.date.rdate2016-10-07en
dc.date.sdate2011-04-03en
dc.description.abstractBackground: The purpose of this study was to examine the impact of a culturally sensitive, cognitive-behavioral family treatment (CBFT) for pediatric patients with Sickle Cell Disease (SCD) to improve pain symptoms, health-related quality of life, functionality, depression, and coping strategies. Individual cognitive-behavioral treatment has been shown previously to be effective at improving pain symptoms, functionality, adaptive coping, and health care utilization, but such benefits have not yet been shown for SCD patients. The present study aimed to address this limitation by modifying the intervention to both include the family and to utilize culturally sensitive practices, which may be particularly relevant for this population. Methods: A non-concurrent multiple baseline design was used to assess the effectiveness of the intervention. A sample of 4 children (ages 8 to 12) and 4 adolescents (ages 13 to 15) participated in the intervention. Manualized treatment consisted of five sessions (including child and parent) that targeted problem-solving skills, cognitive processes, coping strategies, goal setting, and family processes. Outcomes of interest including health-related quality of life, functionality, psychological adjustment, and coping strategies, were assessed by child and parent report at pre-treatment (baseline), post-treatment, and 2-, 4-, and 6-month follow-up. Participants completed daily diaries to quantify pain, anxiety, and functionality. Results: Repeated-measures general linear model analyses were run separately for all outcome variables. A significant main effect of time was found for youth-reported HRQoL, F(4, 20) = 4.6, p=.01, depressive symptomatology, F(4, 20) = 4.5, p=.01, and parent-reported Internalizing, F(4, 16) = 3.4, p=.03, Externalizing, F(4, 16) = 7.2, p=.00, and Total Behavior Problems, F(4, 16) = 7.7, p=.00 from baseline to 6-month post-treatment. The mean frequency of pain symptoms also decreased for five of the eight participants (i.e., visual inspection of the daily diaries from baseline to treatment). Conclusions: These results suggest the potential for clinical gains through the incorporation of culturally sensitive and family-based practices into existing cognitive-behavioral interventions for SCD. The symptomatic improvements observed in the present study indicate gains in both specific domains (i.e., pain), as well as general psychological outcomes (i.e., improvements in depression, health-related quality of life, internalizing and externalizing behaviors).en
dc.description.degreePh. D.en
dc.identifier.otheretd-04032011-211022en
dc.identifier.sourceurlhttp://scholar.lib.vt.edu/theses/available/etd-04032011-211022/en
dc.identifier.urihttp://hdl.handle.net/10919/77342en
dc.language.isoen_USen
dc.publisherVirginia Techen
dc.rightsIn Copyrighten
dc.rights.urihttp://rightsstatements.org/vocab/InC/1.0/en
dc.subjectquality of lifeen
dc.subjectcultural sensitivityen
dc.subjectcognitive-behavioral family therapyen
dc.subjectpainen
dc.subjectpediatric Sickle Cell Diseaseen
dc.titleA Family-Based Cognitive-Behavioral Intervention for Pediatric Patients with Sickle Cell Diseaseen
dc.typeDissertationen
dc.type.dcmitypeTexten
thesis.degree.disciplinePsychologyen
thesis.degree.grantorVirginia Polytechnic Institute and State Universityen
thesis.degree.leveldoctoralen
thesis.degree.namePh. D.en

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