Let's Come Together: An Intersectionality-Informed Grounded Theory Analysis of How African American Daughters Navigate Family Relationships While Providing Care to a Parent with Alzheimer's Disease

Alzheimer's disease impacts many older adults within the United States and African Americans are at a higher risk for developing Alzheimer's disease. Most of their care is provided by their adult daughters, who are often tasked with managing multiple care responsibilities within their families. Prior research has examined one aspect of the caregiving experience for African American caregivers but not how their intersecting identities impact their experiences. As such, this study served to contextualize and highlight the nuances of their caregiving experiences. Using Intersectionality Theory as a guiding theoretical framework, this qualitative study explored how African American adult daughter caregivers navigated their family relationships while caring for a parent with Alzheimer's disease. Semi-structured interviews were conducted with twenty-six African American adult daughters caring for a parent with Alzheimer's disease. Findings revealed that 1) families came together by collaborating on decisions, connecting as a family and speaking regularly, and directly assisting and helping the caregiver, 2) family ideology about African American women and care influenced what the family expected of caregivers and what caregivers expected of themselves, and 3) caregivers are under compounding amounts of stress related to general caregiving strain, time, and racism/discrimination. These findings provide a more contextualized and holistic depiction of African American caregivers and their families. Future research and practical implications are discussed.