Wider research applications of dynamic consent

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dc.contributor.authorSchuler Scott, Ariannaen
dc.contributor.authorGoldsmith, Michaelen
dc.contributor.authorTeare, Harrieten
dc.date.accessioned2022-10-26T15:30:42Zen
dc.date.available2022-10-26T15:30:42Zen
dc.date.issued2019-01-01en
dc.date.updated2022-10-25T20:25:42Zen
dc.description.abstractAs research processes change due to technological developments in how data is collected, stored and used, so must consent methods. Dynamic consent is an online mechanism allowing research participants to revisit consent decisions they have made about how their data is used. Emerging from bio-banking where research data is derived from biological samples, dynamic consent has been designed to address problems with participant engagement and oversight. Through discussion that emerged during a workshop run at the IFIP 2018 Summer School, this paper explores wider research problems could be addressed by dynamic consent. Emergent themes of research design, expectation management and trust suggested overarching research problems which could be addressed with a longer term view of how research data is used, even if that use is unknown at the point of collection. We posit that the existing model of dynamic consent offers a practical research approach outside of bio-banking.en
dc.description.versionPublished versionen
dc.format.extentPages 114-120en
dc.format.mimetypeapplication/pdfen
dc.identifier.doihttps://doi.org/10.1007/978-3-030-16744-8_8en
dc.identifier.isbn9783030167431en
dc.identifier.orcidSchuler Scott, Arianna [0000-0001-6565-8266]en
dc.identifier.urihttp://hdl.handle.net/10919/112282en
dc.identifier.volume547en
dc.language.isoenen
dc.publisherSpringeren
dc.relation.ispartofPrivacy and Identity Management. Fairness, Accountability, and Transparency in the Age of Big Dataen
dc.relation.ispartofseriesIFIP Advances in Information and Communication Technologyen
dc.rightsIn Copyrighten
dc.rights.urihttp://rightsstatements.org/vocab/InC/1.0/en
dc.subjectGeneric health relevanceen
dc.titleWider research applications of dynamic consenten
dc.typeBook chapteren
dc.type.dcmitypeTexten
dc.type.otherConference Proceedingen
pubs.organisational-group/Virginia Techen
pubs.organisational-group/Virginia Tech/Pamplin College of Businessen
pubs.organisational-group/Virginia Tech/Pamplin College of Business/Pamplin Administrationen

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