Extended Family Caregivers for Persons Living With Dementia

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dc.contributor.authorRoberto, Karen A.en
dc.contributor.authorSavla, Jyoti S.en
dc.date.accessioned2022-10-31T12:06:55Zen
dc.date.available2022-10-31T12:06:55Zen
dc.date.issued2022-11-01en
dc.date.updated2022-10-28T13:48:33Zen
dc.description.abstractDespite changes in the structure of contemporary families, little is known about extended family members—siblings, grandchildren, nieces/nephews, stepkin—who are primary caregivers for a relative living with dementia. Information about these caregivers is needed to help ensure their needs are understood by providers in health care and social service settings. The focus of this research was on the care situations of extended family caregivers and the impact of caregiving on their health and well-being. In Study 1, data from the National Study of Caregiving were used to describe the experiences of 107 extended family caregivers. In Study 2, case study techniques elicited additional information about the experiences of 10 extended family caregivers. Collectively, these caregivers provide care with little or no formal support and occasional help from a small informal network. Caregiving affected their physical and emotional health, depending on the strength of the relationship between the caregiver and the person living with dementia and the type of care provided. Findings contribute new knowledge about extended family caregivers and highlight the important role extended family dementia caregivers play and the challenges they face.en
dc.description.versionAccepted versionen
dc.format.extentPages 396-407en
dc.format.mimetypeapplication/pdfen
dc.identifier.doihttps://doi.org/10.1177/10748407221115455en
dc.identifier.eissn1552-549Xen
dc.identifier.issn1074-8407en
dc.identifier.issue4en
dc.identifier.orcidRoberto, Karen [0000-0003-1153-1811]en
dc.identifier.orcidSavla, Jyoti [0000-0001-7142-3770]en
dc.identifier.pmid35960005en
dc.identifier.urihttp://hdl.handle.net/10919/112315en
dc.identifier.volume28en
dc.language.isoenen
dc.publisherSAGEen
dc.relation.urihttps://www.ncbi.nlm.nih.gov/pubmed/35960005en
dc.rightsIn Copyrighten
dc.rights.urihttp://rightsstatements.org/vocab/InC/1.0/en
dc.subjectAlzheimer’s diseaseen
dc.subjectHome-care servicesen
dc.subjectCaregiversen
dc.subjectAlzheimer's Disease including Alzheimer's Disease Related Dementias (AD/ADRD)en
dc.subjectNeurodegenerativeen
dc.subjectAcquired Cognitive Impairmenten
dc.subjectBehavioral and Social Scienceen
dc.subjectAlzheimer's Diseaseen
dc.subjectClinical Researchen
dc.subjectDementiaen
dc.subjectPreventionen
dc.subjectBrain Disordersen
dc.subjectAgingen
dc.subject7.1 Individual care needsen
dc.subject7 Management of diseases and conditionsen
dc.subject.meshHumansen
dc.subject.meshDementiaen
dc.subject.meshFamilyen
dc.subject.meshCaregiversen
dc.titleExtended Family Caregivers for Persons Living With Dementiaen
dc.title.serialJournal of Family Nursingen
dc.typeArticle - Refereeden
dc.type.dcmitypeTexten
dc.type.otherJournal Articleen
pubs.organisational-group/Virginia Techen
pubs.organisational-group/Virginia Tech/University Distinguished Professorsen
pubs.organisational-group/Virginia Tech/Faculty of Health Sciencesen
pubs.organisational-group/Virginia Tech/All T&R Facultyen
pubs.organisational-group/Virginia Tech/VT Carilion School of Medicineen
pubs.organisational-group/Virginia Tech/Liberal Arts and Human Sciencesen
pubs.organisational-group/Virginia Tech/Liberal Arts and Human Sciences/Human Development and Family Scienceen
pubs.organisational-group/Virginia Tech/Liberal Arts and Human Sciences/CLAHS T&R Facultyen
pubs.organisational-group/Virginia Tech/VT Carilion School of Medicine/Psychiatry and Behavioral Medicineen
pubs.organisational-group/Virginia Tech/VT Carilion School of Medicine/Psychiatry and Behavioral Medicine/Secondary Appointment-Psychiatry and Behavioral Medicineen

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